HAVING HEARING AIDS – ONE YEAR ON – MY EXPERIENCE, WHAT IS IT LIKE?

Hello everyone. So this may be a bit of a niche video, but I really wanted to do an update on what it’s like having hearing aids – one year on. I get a lot of comments and requests for an updated video, from fellow hearing loss sufferers, so I hope this is useful! I also include a few tips at the end for people without hearing loss, and how they can support someone who has hearing aids. If you want to find out more about my hearing aids and why I have them, you can find my playlist here: https://www.youtube.com/playlist?list=PLoUu0DSv1cu4yaaqAGtpzmY7_QjQFbLUi Lots of love, and thank you so much, as always, for watching and subscribing! xx 

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❤ MORE ABOUT ME ❤

Q: How old are you?
A: I am now 30 years-old! Argh!

Q: Tell us about your family?
A: I have a son called, Bill, and I am no longer with his dad, as we split mutually when he was a baby. I never imagined my life as it is now, with children to different partners, but I am so happy it is my life. I met Mark in the summer of 2013, and we became firm friends. We fell in love when I became single and we’ve never looked back. We have a daughter, called Daisy, born April 2016, and I’m due our third baby – a boy – in March 2018!

Q: What is your job?
A: I am a trained journalist and former business magazine editor, I then moved into content creation at an agency in Manchester (where I met Mark!) and since Daisy was born, I am now a full-time YouTuber. Yes, it sounds weird to me too! I work around the kids and try my best to make it work!

Q: What camera/software/lighting/music do you use to make your videos?
A: I film my videos with the Canon G7X Mark II (I love it!) and I have a Neweer Ring Light. I use iMovie to edit, PicMonkey for thumbnails, and I use Epidemic Sound, BenSound and the YouTube library for music!

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Comments

Gail 1 says:

Great video Charlotte.

Shannon-Jo Dixon says:

Hi Charlotte! I’ve not watched any of your other hearing videos but I wanted to watch this one as I’ve got an appointment booked at the ENT clinic tomorrow. Basically since I was young I noticed I’ve had bad ringing in my ears but never thought anything of it til now. I’m nearly 18 as you may know. Now, I’ve noticed I always have to turn volume up on things and I get annoyed at people if they talk quieter to me than usual as I can’t hear that well. I know your hearing loss is due to your syndrome and I don’t have that but I was wondering if you noticed any other symptoms? If you want to call it that. Like ringing or anything like that? Lots of love xxx

lubeeluonline says:

Lovely, educational video. Couple of questions: 1) Is there a rechargeable battery for them? And 2) Do you find that a day without the hearing aids leaves you feeling tired? I’m a teacher & a student who is hard of hearing will often flag quite drastically if he’s forgotten his hearing aid. Do you find it happens to you? It may be a childhood thing or changes person-to-person.

Meet The Wildes says:

This was really interesting, Charlotte. I remember that you were a bit wobbly about your hearing aids when you first got them, so I’m really pleased that you seem to have made your peace with them now. x

Callie Schmidbauer says:

Love the setup!

Lisa Borras says:

❤❤❤❤ so much love for this!! So true! Keep up the good work from a fellow proud Hearing Aid wearer!

Rose Mary says:

Thoughtful video

Elizabeth Halliday says:

My mum’s just started wearing ear aids and it’s taking her a bit to get use to wearing them. Brilliant video

Mary Ls says:

I have to have hearing aids

Corrine & Matt says:

I never knew u had hearing aids ! This is so interesting tho lots of love x x x x

Kimberley Ohjustmylittleblog says:

Love this set up, your new hallway right? I’d totally forgotten you wear hearing aids! The tips at the end were really helpful, thank you x

Amy H says:

I have no reason to watch this other than interest in you and I am glad you made this video cos I can tell would help anyone looking for ideas support etc xx

kingbuream218h h says:

Awww your making me cry its sad people when people judge you my hubby wears a hearing aid people dnt understand shout anf say are deaf your amazing person thanks for understanding xxx

samantha hedger says:

Hey I’m also a hearing aid user. I’ve had mine around 3 years now. Mine is server to profound and I also have a genetic condition it’s called Neurofibromatosis. My son also has it. We are very similar haha xx

Kerry Knight says:

So glad you have done this video. I don’t have hearing aids but have had hearing problems since being a child.. I used to get told i was faking it by the audiologist.. my hearing is so bad after having my last son so I need to go back to the doctors x

Salo says:

Great Video, Charlotte! Greatings from Germany, Salo

Ginette Rough says:

Ever since i found this out from a doctor friend I have been on a mission to tell anyone with small children. **button batteries are deadly if swallowed** Its not a case of operate and get then back out bc they leak. I didn’t want to scare anyone. But I have a 5yr old who mouths everything. He has swallowed a magnet. Thankfully just the one. So I am hyper aware of this.
Im looking forward to watching this Vlog. Thanks Gx

Elizabeth Blount says:

Such a great video 🙂 I’m 25 and have been wearing the same hearing aids for almost a year – it’s so nice to hear that I’m not the only one suffering with itchy ears!!! Xxx

Jen And Urwin says:

Hi Charlotte. I’m Jen, I am 34 years old. I live in Surrey in the the Uk. I was born with a similar syndrome to your condition, but neither me or my family realised everything which was different about me was actually linked until I was well into my teenage years and we went to see a geneticist. I have a 1 in 25 % chance of passing my condition on to my own children. I’m dreading any child I have going through everything I went through medically, growing up, especially if they’re partially deaf blind like me. I was born, like you, unable to feed or breathe, so I was transfered from the hospital where I was born, to another hospital a few miles up the road for the first of, wait for it, mum reckons around 30 surgeries to close a massive fistula which affected the whole of my mouth including teeth and lips. I had 5, braces to straighten out my top teeth as far as they could be straightened, plus a piece of bone grafted to my gumbs from my left hip to where my gums hadn’t formed properly either, so they would have been permanently wobbly without the extra bone there.The hole in the roof of my mouth is still there, making eating and drinking still quite challenging for me today, to the point where I use straws and or spoons for most foods which don’t need cutting up or which are particularly sloppy. I wanted my nose and lips rebuilt, because my top lip was about a quarter of the size of my bottom lip which really stuck out and I thought that to be the reason why I dribbled a lot especially when I was asleep. I had my forehead moved forward where my skull didn’t fuse properly. Mum said the docs thought they might have to fracture my skull and so the bones fused properly, but I don’t think that happened in the end. I was also left totally or legally blind as my eyes barely formed. I had an optic nerve when I was born so I had light and colour perception for my first 4 years of life, then everything, suddenly, went dark, shortly before I started School. My retina and optic nerve had died, despite a successful Corneal graft surgery 3 and a half years earlier. Lastly but not leastly, my hearing. I have normal hearing in my left ear but moderate to severe hearing loss in my right ear. I struggle with normal behind the ear or in-ear hearing aids, whether they’re NHS hearing aids, amps or various other hearing aids which I acquired from Boots Opticians or a private clinic in the town where I lived. Everything is louder for me wearing hearing aids in my deformed right ear, but the behind the ear or in-ear hearing aids also cut out very loud noise, so when I eat out in pub restaurants sometimes or I go to discos, concerts, parties Etc, its like I’ve gone deaf in my right ear and I can’t hear anybody on my right side, so I have to insist I sit to the right hand side or right hand end of a table or group of people so I can join in with conversations around me. An old Schoolfriend had a bone anchor hearing aid or BAHA implanted nearly 18 months ago. She is also blind like me, but she was born 3 or 4 months premature. She had severe problems with both ears. She has a daughter who turns 3 tomorrow. She’s trialling a second BAHA on the left side of her head on a soft band. For those who don’t know, a bone anchor hearing aid or BAHA is a sound processor which clicks into an titanium bolt in the side of the skull a few milimetres to an inch from the affected ear if not both ears in some cases. The abutment is the receiver in the side of the skull which conducts sound through the bones of the skull and bypasses the parts of the middle and inner ear or ears which can’t pick up or let in any sound because of the way they have formed. I trialled a sound processor for a Cochlear BAHA 5 smart on the right side of my head for two weeks at the beginning of December 2017, then I had a 5 months 1 week wait until I had a 12 milimetre Titanium bolt or abutment, drilled and screwed into my skull, about an inch above my right ear. That was the worst of all the surgeries I have ever had, because I stupidly decided, because I had bad reactions to general anaesthetic in the past, I’d have this operation under local, for nobody who had it before on the BAHA users group said it would vibrate so badly and so loudly, I would have an anxiety attack on the table, which is exactly what happened. 4 weeks ago yesterday, on the 22nd of May 2018, I went through 90 minutes of absolute hell, but I am sincerely hoping it will all be worth it when I get my sound processor unit on Friday the 13th of July 2018, first thing that morning, followed by the first of hopefully many check ups.

stephanie moss says:

Hy hun I’m in the same boat ,I’ve got to have double hearing aids because I’ve got nerve damage in both ears and they will get worse as I get older. I’ve waited so long to go see someone about my ears but now I can’t wait,just to hear properly again will be amazing.
Thank you for talking about you’re journey it’s a big help.xx

Taegan E says:

Im partially deaf in my left ear due to chronic ear infections when I was younger. I have never been offered a hearing aid. I have been told eventually I will have zero hearing in that ear . So this video has made me want to push for a hearing aid

Lisa Dixon says:

Such a good watch, Charlotte. A few weeks ago I was showing my mam some videos of the gorgeous Charly on The Blushing Bluebird Instagram and it encouraged her to get her hearing aid out of the box and pop it in. Straight away she seemed quite shocked and said how much clearer things were. She’s had it a few years now, has never been asked back for a review and slowly stopped using it. I’ve tried telling her to mention it to her doctor but she can be a little stubborn.

Actually, we have an ENT appointment for Shannon this afternoon. She’s been experiencing a constant ringing for quite some time and had kept it to her self. We have noticed she doesn’t always hear what is said first time and we have to repeat things to her xx

T Marshalle says:

Thank you so much doing video I had been deaf side was born start wearing hearing aid but get bully when was young but now I’m 22 year old start wearing them again year ago same time you get your done thank you so much

Marina-Jane Loves Hello Kitty says:

IF YOU LOVE WATCHING CHARLOTTE AND HER BEAUTIFUL FAMILY GO FOLLOW HER ON INSTAGRAM AND KEEP UP TO DATE WITH #WormGate on HER INSTA STORIES…. She is funny af! Btw great video Charlotte thumbs up girl

Leigh Duncan says:

Great video, I have a hearing aid, I’ve got cholesteotoma, I had surgery last year so I’ve not needed to wear it recently but have noticed it going again so I really should maybe start wearing it again!! Just need new batteries!!!

Louise Watson says:

I have hearing aids since I was 12-13 got them for starting high school and I cannot live without them I’m now 27 I have went in a shower n not realised either lol n had to throw them xx

Hannah Spiking says:

Brill video.

Anita Patel says:

I have been wearing the Phonak hearing aids for around 9 months now due to mild to moderate hearing loss. I’m 36 and my tinnitus started when I was 21. I have constant ringing in both ears and over the years my hearing has also deteriorated. My hearing aids give me so much confidence and I describe it like having my head in a glass bowl when I don’t wear them. Thanks for your lovely video x

Rebecca I_m says:

Wow Charlotte! You look amazing, I know this is not a slimming world video but I thought I tell you you are doing great

kayleighangelk says:

Watching this as my fiancé is awaiting a referral regarding his hearing it’s not been great for a year but progressively getting worse xx

Cookie Fleming says:

We have just been told my 18m old daughter needs hearing aids. Can’t wait for her world to open up so much more when she hears new sounds clearly for the first time. My daughter also has a mild-moderate hearing loss, born with a cleft lip and still has a large gum notch but the hearing issues are completely unrelated to the cleft. How do you find flying with hearing aids? We have 2 holidays coming up and I just wondered if the cabin pressure caused any issues. X

Jackie Stephenson says:

Thank you for this video Charlotte 🙂 I’ve had mine 4 years now and like you say, they’ve changed my life and I also hate it when I run out of battery or forget them. I’m still working on putting my hair up when I’m wearing them though – you’ve encouraged me to try not worrying about that. Really relate to the itchy ears – drives me crazy! So glad they’re working out so well for you.

Coral Taylor says:

A great video, Charlotte. You have such a pragmatic view on life. A friend of mine has worn aids for 30 years. Unfortunately, she has always tried to hide it from everyone, apart from her immediate family and a few close friends, like me. She is so sensitive about it, as she feels that people will judge her. It makes me really sad, as actually most people have realised and don’t give a jot.

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